• June 24, 2024

She Suffers From “Maple Syrup Urine Disease”, And She Just Got Handed Even More Bad News..

A woman suffering from the rare ‘maple syrup urine disease’ says the formula shortage affecting much of the nation could kill her.

“The last three months have been some of the most stressful of my life — because from the moment I heard about the Abbott formula recall, I was terrified,” 28-year-old Hannah Dolins said, adding that she cannot survive without the specialized metabolic formula that she takes with every meal to help her survive daily life

People with “maple syrup urine disease” can’t break down proteins into amino acids, so they need to supplement their diet with formulas containing them. Without these formulas, they can develop life-threatening brain swelling called cerebral edema, making the formula crisis a catastrophic situation for people who rely on products that have been recalled and remain in short supply.

Dolins uses about three boxes of Ketonex-2 formula each month, but due to supply shortages across the country, she hasn’t been able to buy a new box for three months.

Her supplies are running low, and she tells him Well-informed person who fears that scarcity will lead to death. A recent COVID-19 infection that he has suffered from has only made things worse as well.

“I’m 28 years old. I am not ready to die. But without my specialized metabolic formula, Ketonex-2, I may die. I need my formula to live,” she wrote in a first-person essay. She noted that her condition, which is extremely rare, only affects about 2,000 people in the United States every year.

Dolins says if she doesn’t receive the formula for 24 to 48 hours, her brain will deteriorate and she will likely go into a coma and die.

“I want the country to know that when I run out of Ketonex-2, hospitalization will be the only way to keep me alive, but it’s a short-term solution that probably won’t save my life. In the hospital, I’ll be given an IV of D10 dextrose to keep my calorie intake up, but that won’t give me any protein,” she explained. “For that, I would need my formula — but the hospitals, too, are running out of it.”

She says that she consumes about three boxes of the formula each month. Each box contains six cans, of which she consumes more than half a can a day.

“I have COVID-19. I need my formula to fight it. My supply is dwindling every day, and I am scared,” she said. “The formula shortage may kill me, and I want everyone in this country to understand that.”

The baby formula shortage is the result of a relatively small list of companies producing the product in the United States and high tariffs that prevent it from being imported.

Source: AWM

Patriots Beacon